Useful Links & Resources
CELIAC DISEASE
American Celiac Society
Non-profit tax exempt organization providing counseling and education to individuals with celiac disease, dermatitis herpetiformis, Crohn’s disease, lactose intolerance, wheat Intolerance and other dietary disorders.
Celiac Disease Foundation (CDF)
Non-profit, public benefit corporation dedicated to providing services and support regarding celiac disease and dermatitis herpetiformis through programs of awareness, education, advocacy and research.
Gluten Intolerance Group (GIG)
Provides support to persons with gluten intolerances, including celiac disease, dermatitis herpetiformis, and other gluten sensitivities, in order to live healthy lives.
Celiac Sprue Association/USA
Member based non-profit organization dedicated to helping individuals with celiac disease and dermatitis herpetiformis worldwide through education, research and support.
CROHN’S AND COLITIS
Crohn’s and Colitis Foundation of America
Non-profit, volunteer-driven organization dedicated to finding the cure for Crohn’s disease and ulcerative colitis and to improving the quality of life of children and adults affected by these digestive dis- eases through education and support.
GENERAL
American Gastroenterological Association
The oldest medical-specialty society in the U.S. Dedicated to the mission of advancing the science and practice of gastroenterology; publishes two highly respected journals each month; has a patient center through which patients can learn more about their digestive health and GI disorders and locate a doctor in their area.
Digestive Disease National Coalition
An advocacy organization focused on improving public policy related to digestive diseases and increasing public awareness of diseases of the digestive system. Very good site for other links.
National Digestive Diseases Information Clearinghouse
An information dissemination service; goal is to increase knowledge and understanding about digestive diseases among people with these conditions, health care professionals, and the general public.
LIVER
American Association for the Study of Liver Disease
AASLD is the leading organization of scientists and health care professionals committed to preventing and curing liver disease.
American Liver Foundation’s (ALF)
The nation’s leading nonprofit organization promoting liver health and disease prevention; provides research, education and advocacy for those affected by liver-related diseases including hepatitis.
Hepatitis C Association
Hepatitis C Association’s mission is to provide education and support to viral hepatitis patients, their caregivers, and ancillary medical staff.We achieve this through our website, advocacy, and programs that offer unbiased factual information to improve the lives and health of patients.
MOTILITY
American Motility Society
The group’s mission is to advance the study of neurogastroenterology and GI motility, to translate the scientific advances to patient care, and to disseminate the knowledge to patients and caregivers in order to improve the diagnosis and treatment of patients with neurogastroenterology and GI motility disorders.
Association of Gastrointestinal Motility Disorders
Non-profit international organization which serves as an educational resource concerning digestive motility diseases and disorders, functions as an important information base for members of the medical and scientific communities, and provides a forum for patients suffering from digestive motility diseases and disorders, their families, and members of the medical community.
Gastroparesis and Dysmotilities Association
A North American non-profit group focused on education, awareness, advocacy, and support for research into digestive motility problems, providing an on-line forum and patient educational booklets.
NUTRITION
American Society for Parenteral and Enteral Nutrition (ASPEN)
Promotes communication between professionals involved in the area of nutrition support, promotes proper application of nutrition support, and encourages professional competence in the field of nutrition support.
Academy of Nutrition and Dietetics
The Academy of Nutrition and Dietetics and registered dietitian nutritionists, the food and nutrition experts, are here to help you find accurate information to support your healthful lifestyle.
OTHER
Carcinoid Cancer Foundation, Inc.
Non-profit organization encouraging and supporting research and education regarding carcinoid and related neuroendocrine tumors.
Cyclic Vomiting Syndrome Association
Raises awareness and provides education and support to those affected by cyclic vomiting, abdominal migraine and related disorders while advocating for and funding research.
International Foundation for Functional Gastrointestinal Disorders (IFFGD)
Nonprofit education and research organization addressing the issues surrounding life with gastrointestina lfunctional and motility disorders and increasing the awareness about these disorders among the general public, researchers, regulators, and the clinical care community; mission is to inform, assist, and support people affected by gastrointestinal disorders.
The National Pancreas Foundation
Supports the research of diseases of the pancreas and provides information and humanitarian services to those people who are suffering from such illnesses.
American Partnership for Eosinophilic Disorders
Non-profit organization working to improve awareness, education and research funding for eosinophil associated disorders and sup- port families living with eosinophil associated disorders including eosinophilic esophagitis, eosinophilic gastroenteritis, hypereosinophilic syndrome and others.
